Michael is doing well.  He is healthy and strong weighing in at 188 pounds.

He turned 18 years old in March. This makes him eligible for Medicaid and SSI.  Applying for SSI was relatively
painless and quick. The girl at the SS office was a great help.  It probably helped to expedite things by furnishing
over 2000 pages of medical records to them.  Medicaid looks like it is going to be a pain.  Trying to figure out
what he is eligible for is a nightmare.   At this point, it looks like it ain’t much.  Medicaid is tied to The
Department of Children and Family Services; that explains a lot.

Michael has all the rights as any other adult in Florida.   This means that I can no longer make decisions for him
or see his medical records;  he is no longer a minor.  I remedied this by paying $1200 to an attorney to petition
the court so that I could  become his guardian so that I can continue to take care of him.  Basically, I’m doing
exactly what I have been doing for the past 4 years, except with a lot less money. Gotta love the system.

We have a new girl watching Michael.  She is a LPN student and does a great job with him. She is both competent
and caring, which is hard to find these days.  I hope she sticks around for a long time, we really like her and I
think that Michael does too.

He went to the dentist last week and did really well.  He appeared to open and close his mouth  when the hygienist
asked him to.  He seemed to really react to the suction wand,  pursing his lips around it like a straw.  I might have
to try a straw with him.  

He was in the pool at school today and they said he smiled from the time his feet hit the water until they took him
out.  He was still in a great mood when I visited him at lunch.


I will try to update more often.

Take care,

Dave



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Daily Update

May 12, 2009